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Archive for August, 2005

I did some research on CT-scans to prepare for my appointment this afternoon. I got a flyer at neurology, but can’t read it and didn’t want to ask Mum, Dad or Sigrid to read it to me – I don’t know why, but I feel I’m too focused on this procedure and what it entails. [...]

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If we create and maintain our identities and self-images because of a need to provide our lives with a sense of unity and purpose… why do we have such a need in the first place?
This is a difficult subject for me. Why would one need an identity, a self-image, in the first place? Why is [...]

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On the hydrocephalus forum at BrainTalk Communities, eveyrone is really alarmed, but I attribute that to the fact that I’ve not had my shunt checked in ten years and the fact that I am virtually clueless about hydro. It’s the same as the people on the ROP-support list getting concerned cause I hadn’t seen an [...]

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Somehow, I’m feeling there’s some odd similarity between last year’s eye doc’s visit and the current neurological visits, and I wonder if possibly the only explanation of this coincidence is hypochondria on my part. About a week before the headaches and nausea started, I was having tooth pain that continued till last week. The dentist’s [...]

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Since my neuro appointment yesterday, I’ve been interested in hydrocephalus as it relates to preemies. Now of course chances are low that I truly have shunt failure, but just the fact that I was confronted with it made me interested. I can hardly remember anything about my shunt or hydro. I do remember my father [...]

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For about two or three weeks, I’ve been having strange symptoms of vague headache and nausea. At some point, I got concerned that the shunt that I’ve been wearing since I was a year old might be damaged. I got my shunt to treat hydrocephalus as a result of a brain bleed (intraventricular haemorrhage?) I [...]

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While having dinner on Monday evening, I sat next to Menno, this young man who used to be at my high school. We talked some about school and stuff. I didn’t let him know that his mother had called my parents so that I’d heard of him before. I didn’t want to come across like [...]

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I’m back from my first week at the rehab centre. It was pretty quiet this week, since not all my classes have so far been scheduled – occupational thrapy/activities of daily living/whatever you want to call it and physical therapy have yet to be placed on my timetable, cause the folks who teach that were [...]

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Off to Rehab I Go!

So, I’m going to take the taxi at 12:15 and will be at rehab by 1:00 PM or so – I won’t have to be there till then cause some people are absent. I’m pretty excited and very curious as to what it’ll be like, as I’ve said already many times. I’m hoping it will [...]

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Thoughts on a Book

I’m currently reading Planet of the Blind by Stephen Kuusisto. It’s the blind man’s autobiography and it makes a lot of sense to me. This man is blind from ROP, just like me, and like me he also has some useable vision. He had great difficulty accepting his blindness. I tend to feel strange about [...]

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