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Archive for July, 2005

In my previous entry, I was once again presuming that my behaviour problems are serious, no matter their cause. I am in a weird situation with regard to this. I’ve not had really horrible moments since last October, but there are many times when my tantrums got really out-of-hand but that are less extreme. I [...]

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Sarah sent me an article on stress and trauma in preemies, that I think is interesting. It discusses possible traumatic effects of the NICU experience on former preemies and the subsequent psychiatric outcomes. Very little research has been done in this area. I know one kid who was diagnosed with RAD (Reactive Attachment Disorder) and [...]

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As I was updating my page on prematurity yesterday, I got to think of the idea of preemies as survivors. Many of us former preemies claim survivorship, take pride in it and yet also recognize the effect it’s had on us. I have no problem with the Dutch word for “survive”, which just means “live [...]

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I got as book from the Dutch library for the blind which is a collection of interviews with women with disabilities. One of these interviews struck a chord with me. It’s with a severely hard of hearing (nearly deaf) woman in her early thirties. Many things of what she describes have been similar for me [...]

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In the book Emma and I by Sheila Hocken, there’s a chapter in which Sheila gives talks about her guide dog. She goes to a school for the handicapped and is nervous cause she thinks that the wheelchair-using children are so much more crippled than she is, but it turns out that the handicapped children [...]

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I did some more research on blindness agencies in the Netherlands, and I seem to get the impression that all offer roughly the same services and all are pretty diverse, in that all have living facilities and sheltered workshops, mostly for folks with multiple disabilities, that all have special schools and that all also offer [...]

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Sometimes, I think that the blindness field in the Netherlands is a quite unified, reasonably progressive field where at least blind people are being listened to, even though some organisations could do a better job of cooperating with the blind. My country is pretty small and some organisations operate nationwide and have some type of [...]

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In some ways, I begin to realize that the “positive” philosophy about blindness as being merely a characteristic, is not all that different from other cultural models of disability. It’s only more extreme, in that it presumes that blind people need no extra adaptations (except for braille, canes and all sorts of technology) or considerations [...]

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I just found out about a project Bartiméus has been hosting for several years that allows blind and visually impaired children to do their HAVO, a medium level high school, at special education. Children used to be able only to do a low level high school at the schools for the blind and if they [...]

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I found yet another article promoting high expectations of blind children and this time it made me wonder what it is that I’m terribly mistaken about in my situation. The main reasons why I’m wondering about this are that this article has not been written by an NFB folk, or if it is, has not [...]

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